Lily-kayda's Family and Their Tales of Terrorizing Tumors

In October 2008, 3 year old Lily was diagnosed with 2 types of Cancer. In 2012 her mom was diagnosed with 2 types of cancer. Here are the current updates on Lily's family, their tumors, treatment and living with Li Fraumeni Syndrome.

Tuesday, March 31, 2009

Monkeyin Around

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Today did not go much more smoothly, but things gradually fell into place. Lily had her scans, and Phil arrived right after she was sedated ...
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Bumpy start

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Yesterday was a bumpy day. We went back and forth around the hospital getting ready for chemo . Lily got accessed, we waited for lab result...
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Sunday, March 29, 2009

Bouncy, bouncy...

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Lily's emotions or her in the bounce house? Up and down, up and down. I was just discussing with my mom how we have the steroids under c...
Friday, March 27, 2009

Going....Going.....

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Lily's hearing test was rather disheartening today. She is has moderate hearing loss in quite a few ranges and severe hearing loss in h...
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Another day in Paradise...

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I generally forget how close we live to tropical hideaways. KoOlina is awesome- but it's man made. The ocean of course is real- but the...
Thursday, March 26, 2009

Water gun Wars and Wrestlemania 5

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So as I sat quietly trying to update the blog yesterday, the kids got out waterguns and were having a blast(ha ha) in the back yard. Of cour...
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Tuesday, March 24, 2009

Getting poked is a bundle of fun.....or not.

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Getting stuck with a needle sucks. Explaining this to young kids is futile. I'm not sure at what age this changes, because I have seen s...
Monday, March 23, 2009

Just keep counting....

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Lily's counts are dropping. She bled last night with her shot, but mostly her attitude tells me. We're back on the cancer coaster o...
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Sunday, March 22, 2009

Facebook

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My house looks like a tornado hit it. My kids are acting like it's ultimate cage fighting III. The weather is glorious and my yard needs...
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Saturday, March 21, 2009

The Birthday Song as Recorded by Lily and Bella

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