Wednesday, December 1, 2010

12 Days of Sickness

›
On the First Day of Sickness, my Kiera said to me- I don't feel well as she shared her food and drink with the other three. So day by da...
Tuesday, November 23, 2010

Lily's First Field Trip

›
This free digital scrapbook created with Smilebox
Saturday, November 6, 2010

The Ties that Bind- Scissors anyone? anyone?

›
The difference between friends and family is that you get to choose your friends. It's not until the we embark on this fun little journe...
Thursday, November 4, 2010

Mutants Unite- Li Fraumeni Syndrome Conference

›
My feelings on the LFS Conference The excitement electrified the air. People were telling jokes, laughing and filled with the expectati...
1 comment:
Monday, October 25, 2010

The worms crawl in, the worms crawl out, the worms play penochle.....

›
Everything we need to know can be found in nursery rhymes. A week ago, after checking a few concerned emails- it occurred to me I never post...
Saturday, October 9, 2010

Love Bites

›
I'd have to say I've been dreading the scans for awhile. Well over a month. Probably close to 3 months. It was right after we finish...
1 comment:
Tuesday, October 5, 2010

Adrenal Insufficiency in Kids

›
Lily has Adrenal Insufficiency. Fancy words for her adrenal glands don't work right. Some kids are born with the condition. Two years ag...
Saturday, October 2, 2010

Giving Kids the World

›
It's been a year since we had our Make a Wish trip to Disney. We spent an amazing week at a fun filled village called Give Kids the Worl...
2 comments:
Thursday, August 26, 2010

Well Burst my big fat Normal Bubble....

›
I can't believe Lily has been in school for 2 whole weeks. It makes no sense because my house is still a mess, my laundry is still unfol...
2 comments:
Thursday, August 5, 2010

Port Removal

›
Almost 2 years ago, with her second surgery, Lily received a Port a Cath for her chemo treatments and bloodwork.  The accessing of said port...
2 comments: