Lily-kayda's Family and Their Tales of Terrorizing Tumors

In October 2008, 3 year old Lily was diagnosed with 2 types of Cancer. In 2012 her mom was diagnosed with 2 types of cancer. Here are the current updates on Lily's family, their tumors, treatment and living with Li Fraumeni Syndrome.

Sunday, March 20, 2011

Lily's 6th Birthday!!

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We took a trip to the Big Island and celebrated Lily's 6th Birthday there. We got to see the sights, bowl a little and most of all wish...
Thursday, March 10, 2011

Cupcakes for Class

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It was so much fun to make and take cupcakes to Lily's class to celebrate her 6th birthday. Since her birthday falls on Monday next week...
Thursday, February 24, 2011

Long Term Effects Of Cancer

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A friend just posted a quick note about seeing a mom with a lil cancer fighter on her lap at a school event.  I am not surprised by my react...
Wednesday, January 12, 2011

Permission from Death

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Stop looking, stop worrying. If it is death you fear, fear no more. I found it, I should say him. He who gives permission to die. Many of yo...
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Wednesday, December 1, 2010

12 Days of Sickness

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On the First Day of Sickness, my Kiera said to me- I don't feel well as she shared her food and drink with the other three. So day by da...
Tuesday, November 23, 2010

Lily's First Field Trip

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This free digital scrapbook created with Smilebox
Saturday, November 6, 2010

The Ties that Bind- Scissors anyone? anyone?

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The difference between friends and family is that you get to choose your friends. It's not until the we embark on this fun little journe...
Thursday, November 4, 2010

Mutants Unite- Li Fraumeni Syndrome Conference

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My feelings on the LFS Conference The excitement electrified the air. People were telling jokes, laughing and filled with the expectati...
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Monday, October 25, 2010

The worms crawl in, the worms crawl out, the worms play penochle.....

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Everything we need to know can be found in nursery rhymes. A week ago, after checking a few concerned emails- it occurred to me I never post...
Saturday, October 9, 2010

Love Bites

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I'd have to say I've been dreading the scans for awhile. Well over a month. Probably close to 3 months. It was right after we finish...
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