Thursday, April 25, 2013

So far so good

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It was 4 am. There were sheets of warm droplets coating the homestead. The man of the house prepared for a major check ride at work and I la...
Tuesday, April 23, 2013

Scanxiety

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I have purposely been avoiding scheduling Lily's PET scan. I admit it. It's no secret. It hasn't been for lack of trying- I trie...
Monday, April 1, 2013

Springing into Action

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I love love love Spring.  It gets a little overwhelming at times with all the birthdays and Easter.   My birthday marks the time of year I r...
Thursday, February 28, 2013

Our Friend NED, we want him to stay for a long visit.

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I finally tracked down Lily's MRI results. NED is our friend. We love NED. NED is No Evidence of Disease. Another new favorite phrase is...
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Wednesday, February 20, 2013

Brainiac

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After battling traffic and parking related to Tripler way too many times in the past month- I was relieved to have a night appointment. Sinc...
Thursday, February 7, 2013

Making the lists

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After a dozen or so scans- I finally got smart and didn't tell Lily about it until the last minute. I actually didn't tell her about...
Wednesday, January 30, 2013

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Every 2-3 months Lily and Phillip go for their routine endocrinology check ups. They are long afternoons- usually 3 hours plus traffic in a ...
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Sunday, January 20, 2013

Support Groupie

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As a young adult- I didn't understand the support group dynamic. I was a fairly introspective person and couldn't quite relate to ho...
1 comment:
Thursday, December 6, 2012

Au Naturale

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Lily finally is on the mend. I know this because she is dancing around at inappropriate times, whipping her hair, legs and arms all around. ...
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Saturday, November 17, 2012

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The average time between Mallory hospitalizations= 6 months  +/- 179 days. Wednesday night Lily was not feeling well. Sometimes when Lily ...
1 comment: