Lily-kayda's Family and Their Tales of Terrorizing Tumors

In October 2008, 3 year old Lily was diagnosed with 2 types of Cancer. In 2012 her mom was diagnosed with 2 types of cancer. Here are the current updates on Lily's family, their tumors, treatment and living with Li Fraumeni Syndrome.

Wednesday, June 26, 2013

Adrenaline Rush

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The adrenal glands are pretty amazing organs. These lumpy glands perched on top of each kidney like a floppy little stocking cap are respons...
Friday, June 21, 2013

Life in the Triage Lane: A Lymphomaniac Tale

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Last week, the beloved husband was gone. When he's gone- I make feeble attempts at being fun parent instead of boring, rule making, chor...
Saturday, June 1, 2013

The Importance of Anniversaries

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It's June 1. The school year is finally over. The mad rush is dying down- as much as it ever does in a household with 4 kids. I was in t...
Saturday, May 25, 2013

Beyond the HoneyBadger: Finding Honor Courage and Commitment

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Life experiences alter personal views of "the big picture".  I feel we are constantly preaching to our kids- keep an eye on the bi...
Saturday, May 18, 2013

Good Grief

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Grief is a really funny thing. It is malleable, fleeting, steadfast and lingering. It can blindside you. It can creep into your body and sou...
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Thursday, May 16, 2013

TATAs on Notice? I'm so Ovary it.

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The world is abuzz with Angelina Jolie's choice to have prophylactic surgery. To be honest my first thought was-Big Deal- in Hollywood- ...
Thursday, April 25, 2013

So far so good

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It was 4 am. There were sheets of warm droplets coating the homestead. The man of the house prepared for a major check ride at work and I la...
Tuesday, April 23, 2013

Scanxiety

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I have purposely been avoiding scheduling Lily's PET scan. I admit it. It's no secret. It hasn't been for lack of trying- I trie...
Monday, April 1, 2013

Springing into Action

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I love love love Spring.  It gets a little overwhelming at times with all the birthdays and Easter.   My birthday marks the time of year I r...
Thursday, February 28, 2013

Our Friend NED, we want him to stay for a long visit.

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I finally tracked down Lily's MRI results. NED is our friend. We love NED. NED is No Evidence of Disease. Another new favorite phrase is...
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