Lily-kayda's Family and Their Tales of Terrorizing Tumors

In October 2008, 3 year old Lily was diagnosed with 2 types of Cancer. In 2012 her mom was diagnosed with 2 types of cancer. Here are the current updates on Lily's family, their tumors, treatment and living with Li Fraumeni Syndrome.

Sunday, August 31, 2014

Living LFS

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Have you hugged a MUTANT today? I have. 5 years ago I learned that not only did I pass a dreadful genetic mutation on to one of my child...
Friday, August 22, 2014

The EVERYday challenge of LIVING with debilitating diseases

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It's AUGUST and I am already dreading October. I'm dreading the pink washing of "awareness" that comes with Breast Cancer ...
Saturday, August 16, 2014

Don't Drive Angry Phil

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Every time Phil pulls into a parking spot I cringe. He's never hit another car while parking but he seems to be a little more aggressive...
Sunday, August 10, 2014

Keeping Calm through Craziness and Cyclones

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Everything happens for a reason.  That doesn't mean it's good or fun or that we don't have a say or that we do have a say- but ...
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Wednesday, July 30, 2014

Bad Hair Day

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Last week the girls had auditions for Little Mermaid Jr at PACK. The practiced their little hearts out and I was really impressed with how...
Sunday, July 6, 2014

Back to Chemo

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So vacation's over. Tomorrow is back to the chemo routine. It's kinda like going back to school- the knot in your stomach. I know it...
Monday, June 16, 2014

Pancreas Boy and Talks of the "Artificial Pancreas"

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For the past few days I've seen several articles about the great new "artificial pancreas" system. Some call it bionic.  Being...
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Thursday, June 12, 2014

Healing

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Being in the hospital is one of the most torturous experiences.  By all recent comparisons, this stay was a 4star excursion. I had my own ro...
Tuesday, June 3, 2014

Friends with Benefits

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Over 20 years ago, I was the new girl in school. Middle School. In the middle of my 7th grade year- as if that year isn't a bundle of fu...

Summer Plans

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Most summers past consisted of me trying to strategically plan activities for the 4 kids with precise dispersement so that there was balance...
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