In October 2008, 3 year old Lily was diagnosed with 2 types of Cancer. In 2012 her mom was diagnosed with 2 types of cancer. Here are the current updates on Lily's family, their tumors, treatment and living with Li Fraumeni Syndrome.
Tuesday, December 2, 2008
Home Again
We made it home. 1 flat tire and 2 vomits later...we made it home. Lily's white cells were back up and she hasn't had a fever since the night we admitted. She will be on IV antivirals at home. We go back Thursday and Friday for our normal pretreatment work ups and will be back in the hospital Sunday night for round 2 hydration followed by the actual chemo Monday and on. We upped her mitotane again Monday so she's nauseous and throwing up. And the antivirals cause nausea. No shortage of that these days. If I haven't mentioned it before..this is a blast. Oh yeah and the hair...everywhere. Comin out in clumps. She rolls over at night and sneezes and starts coughing because it gets up in her nose and mouth. On the positive side- once it's all out we won't have to deal with that for the next few months and at this rate that should be relatively soon. Poor Monkey. Are there hairless monkeys? Kinda like those cat/rat things that are hypoallergenic. As soon as Phil gets home- I am in bed.
Sigh of Relief!! Lily is home with the other 3 monkeys. Mommy gets to sleep in her own bed???
ReplyDeleteAs for hairless monkeys I'm not sure. This is the point where you cover pillows with towels for easy changing or you get out the clippers and shave her head. You can also have her wear one of those little knit hats to contain the loose hairs and to keep her head warm. After growing up with all that hair she is used to having a warm little noggin. I pray for some quiet moments for you. Hugs all the way around. Love, Mom (Grandma)
seriously, a flat tire too?! I'm glad you got back home though! Sleep, sweet sleep in your own bed!
ReplyDeleteWhen they write the story of Superwoman, they will write about you.
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