Saturday, November 8, 2008

Latest Diagnosis

So we got word from the official pathology report on Lily's Leg tumor, although I haven't seen it and I tend to mistrust my memory these days unless something's in writing. The good news is that the diagnosis came back as Plexiform Fibrohistiocytic Neoplasm(Tumor). A very rare, mildly malignant tumor of the soft tissue. So I guess technically it is not a sarcoma, but still cancer. But better, I guess if you look carefully at the degrees of malignancy. I've been trying to do some research, but again- it's a very rare tumor that pops up in children's extremities. One paper hinted at a mutation on chromosome 17( same chromosome as p53) that causes this tumor and thus hinting at a link. I wouldn't call it a stretch -given MY professional opinion. When cells go from normal to cancerous, there is a progression and changes that occur during this transition. I am of the opinion that Lily's tumor was in it's infancy and was rearing to become some sort of fibrosarcoma. We'll probably never know and hopefully it won't come back so we won't have to find out. The treatment recommended was re-excision, and we did that.

1 comment:

  1. Hi there,

    We live in Boulder, Colorado and have been searching to learn about someone else having a case similar to ours. We have a 5 year old son who could have plexiform fibrohistiocyctic lesion or a neurothekeoma. We would love to connect with you and learn more. 303-415-9895. Thank you for your posting. Tracy and Timothy Heiman


Lily Kay Monkey

Lily Kay Monkey
November 2008 Photographed by Shelley Detton (7 Layer Studio)