Monday, January 26, 2009

Another Chemo Monday.....

I sit here and it's quiet. Phil dropped the kids at school on his way to Cycle 4. Due to the Rockiness of the past couple weeks- they let us stay home last night and bring her in this morning. I will go in tonight since he has to be in to work early tomorrow. We had 2 good days, Lily felt better, only a few major mood swings and 3 nights without interruption. Bella woke up and is sitting, quietly on my lap. I know it is short lived, but it is nice.

A corner of the kitchen is devoted to Lily's medical paraphenalia. We also have a cabinet shelf in the hall upstairs for the nighttime regime. I used to be bothered by all the clutter on the counter- now it is overshadowed by stuff we need daily. Phil keeps trying to find an organizational system that works.

Lily helped the past couple days with her meds. She likes the mortar and pestle. She put tea and sugar in them and mixed it together. We had to stop at Walmart on Friday to get Mylanta, as a last ditch effort to help her tummy(on the good side- it really seems to help- a true "now why didn't I think of THAT" moment). I remember my dad drinking the stuff out of the bottle. The sign hanging above the Pharmacy has a mortar and pestle on it- Lily recognized it instantly. Ironically enough- there is not a mortar and pestle to be found there- but lots of options in the antacid front. She has started unhooking her feeding tube and this morning she said later I can teach her how to put it on. She has a little backpack we hook it into during the day. She went through a phase where she pretended to sleep every time I took her picture- like there is a shortage of pictures of her sleeping. Unfortunately none of them are between the hours of 8pm and 6am.

1 comment:

  1. Thank goodness for a little rest and quiet. What beautiful little girls! Love - Mom


Lily Kay Monkey

Lily Kay Monkey
November 2008 Photographed by Shelley Detton (7 Layer Studio)