Friday, January 23, 2009

Here we go Again.

We showed up to clinic by 9, hoping to get out of there earlier and maybe get home to a such luck. Well, Lily managed a nap. She needed it considering her new routine includes cat naps here and there, at the expense of a good night's sleep. 6 hours later.. A blood draw, an ECHO, another Xray, meetings with 6 different doctors (psychologist included), and a hearing test and we were finally on our way home. We still don't know why her belly hurts so much, her behavior is somewhat "normal" for what she's going through, her heart is good, but her high frequency hearing loss has started. Another piece of her slips away. The audiologist assures me it's way out of normal ranges of hearing and we will keep an eye on it- considering everything going on this is small beans. 3 months ago I was explaining to my husband how- considering everything she's facing, what's a little hearing loss? Yet today, when faced with it, it doesn't seem insignificant at all.

1 comment:

  1. Sometimes it aches to see just the normal changes in our children much less those caused by cancer. Just keep remembering you are doing everything you can to keep that beautiful little body and spirit alive. You are giving her the the gift of love.
    Love you, Mom (Grandma)


Lily Kay Monkey

Lily Kay Monkey
November 2008 Photographed by Shelley Detton (7 Layer Studio)