Monday, March 12, 2018

Cycles.

I have 3 girls.

Enough said.

Karma. Payback. I was NOT that tough a kid. THREE girls.

Phil is oldest of 6 boys. One sister. This karma is on him. And where is he? Bali.

I'm actually happy for him. He keeps sending me these glorious pictures of seafood(gag.) and beautiful scenery. Ambassador, goodwill, whatever the mission- he's earned some good food and star treatment. For the love of God- he works 3 jobs(he would disagree- but, well seriously) and takes care of US. 

I'm still trying to get a handle on my "cycles". The girls are still getting a handle on theirs. Bella technically does not have one yet. Hell, I don't have a uterus or ovaries- but apparently we are all in this together. Dobby ate a quarter stick of butter today- I guess we'll see how it goes.

We are all just trying to find our way through this crazy thing called life. We are living. It's messy. It's hard. And it is fucking beautiful. Sometimes I cry uncontrollably.  Sometimes I laugh. I text friends, I drink. Sometimes it's tea. Sometimes it's vodka.  What else can you do? The ups. The downs. The cycles.

I'm trying 4 week cycles of chemo instead of 3 week cycles. Literature says....standard of care says... well, we are used to going off map. My platelets held steady this month. That's good. My onc is concerned about the bone mets- scans are ordered- fingers crossed. Haven't taken a gander at the ol brain in awhile. Need to do that. I get a couple more good days each cycle now. That is good.  One shark at a time.

Kiera has a stress reaction- aka-almost break, could someday be a break-aka owie on her spine. Most likely from her competitive lil self (despite adamancy that she does not want to compete..)contorting herself in all kinds of ballerina craziness. She is resting from dance and healing. It breaks my heart. It's not huge, but she is such a beautiful dancer. She will find her zen. I have no doubt. She reminds me so much of me sometimes and god damn it I want better for her. She asks to stay home from school more often. Mom and I used to call them me days- then mental health days. My counselor friend says it's ok- one a month is reasonable. Kiera's now coincide with my tough weeks. It's her way of helping. I love it. I HATE it. Don't get me wrong- it's not all bad- just the growing pains. She's got to do it. For both of us. I want her to fly. She will.

Phillip has a brain. Seriously- he's 18- we were all kinda wondering. Research says something about male brain formation not complete until 25- IF. I . HEAR. THAT. ONE. MORE. TIME. I might form a brain and develop it up someone's... well anyhoow. He has a cyst- it's been there- and another one resolved- yeah us...and a smattering of lymphnodes that aren't concerning, but we will check on, because well we are tumorific. Hopefully its just allergies and well gross teen boy crap. I honestly love our mornings together. I missed him so much last year. He will do great things. He needs to take care of himself as much as he takes care of his friends...that sounds familiar. He just has to trust himself. He's got the wings, he just has to focus on using them. He will.

Lily. Almost 13. THIRTEEN!!! I can not, NOT cry just thinking about it. It could have gone so many different ways. It hasn't been easy. BUT it is ALWAYS worth it. It's not perfect. We are not perfect. But she is HOPE. She is my hope. She is my strength. She drives me out of my ever loving mind. I would not have it any other way. Before Lily, I did not know living with cancer. Cancer came, ravaged and left me to carry on, living after cancer. Well sort of, kind of. Each time is so different. I am thankful. For her spirit, the reminder. To Persist. To appreciate. To pray, even just for a little luck. She is my luck and I wish nothing but good luck for her. She can do so much. The glass ceiling- breakable. She will.

Oh dear Bella. I love her. May strangle her. God may not give us more than we can handle- well we are certainly testing boundaries with this one. I just think- if she was my first, second or third child- I would be at a complete loss. As the youngest- well- life. Cycles. Humans. Luck. She's gonna move mountains in the most random hysterical way. Or if it's easier to just fly over them.  She will.

Parenting- not for the weak. I may post the smiles and the good, we have our fair share of ugly. Everyone does. Marriage. Wow. And I married my best friend. The person I love more than anyone. The person I like more than anyone. Most days. Hell- tried to reproduce and carry on the gene pool. Need a few more floaties- but we keep swimming. Genes and humans- not perfect. Quite frankly a big hot mutated mess. Yet we love, we live, we pass on the cycle. Always trying to leave it a little better and prettier than we got it. Nailed it. Mic drop. *

*"better" and "prettier" are entirely subjective. Still nailed it.




1 comment:

  1. Much love to this talented,loving, caring family! Dont know where I'd be without them! Love you!

    ReplyDelete

Lily Kay Monkey

Lily Kay Monkey
November 2008 Photographed by Shelley Detton (7 Layer Studio)