A new friend happens to be, well in her BC(before child) identity was a child life specialist. She sent us the new favorite book (for all the kids) called Oncology Stupology. It's a great book and is really relatable for Lily- her biggest complaint is that the mommy is not in enough of the pictures- so I told her the mommy is taking the pictures. I also signed the kids up for the sibling program through Candlelighters(childhood cancer foundation) and they have been getting info and packages in the mail. Phillip enjoys reading the books, Kiera likes the fridge magnet that has all the different feelings on it- today she is happy- I'm pretty sure that's because Santa is coming tonight. We are praying for a Silent Night. We go in to clinic again today and I hope her temp stays below 100. It's hovering at 99. We gave her fluids last night since it has extra potassium in it and she asked for her night tubies. Keeping our fingers crossed.
We went into clinic on Monday and after a 4 hour visit- and some platelets, got to come home. Lily usually watches Barney while we are in there. But on Monday she wanted to watch Dora. She has been asking for days to watch the Dora where she saves the puppy. Phil and I were unsure as to which Dora that was. We kept playing the 3 we have saved on DVR- but none had a puppy. So I have looked through the ONC collection before and no Dora in the treatment room. One of the older kids must have been in because all the Xbox games were spread on the TV cart. There were also 2 DVDs along with the 2 Barneys Lily usually watches. They were Shrek and Goonies. Two family favorites back in the day. My cousin Eric who had a brain tumor LOVED ,Goonies. I hardly even see it on TV anymore and smile to myself thinking of the little guy- figuring it's a little sign her angels are keeping their eyes on her. Lily says she doesn't want to watch Shrek or Barney she wants to wacth DORA! How about Goonies, I ask? She hasn't seen it- it's really not her speed- but you never know. I open it up, and inside is Dora as the Fairytale Princess DVD. Yeah I got chills. SO I giggle and put it on. I've heard a billion Dora episodes, but rarely watch them. So as I sit watching with her I am dumbfounded, it's the one where Dora helps the Gigante Giant find his puppy.
Yep.... her little angels are watching out for her. Hope it's a silent night and a merry christmas.
ReplyDeleteStill in our prayers, Jen Harris
Kids don't forget a thing. I am always amazed at Bo and Rylee's recall. How cool that the Dora movie was inside Goonies. Sometimes I think those are the subtle ways God gives us a "tangible" hug. - Julee Daniels
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