Lily's counts are dropping. She bled last night with her shot, but mostly her attitude tells me. We're back on the cancer coaster of emotions. Up one second, screaming down the other side the next. Of course she's on a carrot kick, and technically she shouldn't eat fresh fruits and vegetables if her counts are low- but she's eating something healthy.....oh the conundrum. Last month was hot dogs- now she won't touch them- all she wants is McDonald's hamburgers- again can't eat out if counts are dropping. Phil made hamburgers the other night, she wouldn't touch it. I need to go to the commissary and get some of those frozen white castle ones, maybe she'll eat those.
Phillip and Kiera are at the Boys n Girls club for their spring break program. They get to go to the Sea Life Park today. This week I take them in to get their blood drawn for p53 testing. I don't want them to live in fear- but I want them to be careful. I'm keeping my fingers crossed, but each kid has a 50/50 chance of inheriting the mutation. Theoretically, statistically speaking- you would expect 1 of the other 3 to have it, but they could all have it or all not. It's like the penny flipping experiment in high school. Each flip is 50/50 chance- but you could end up with 4 tails in a row or 4 craniums or 2 n 2 or 1 n 3. Fun stuff.
Apparently something is broken and I have been enlisted to find the handy manny tool set......then I must clean the bathrooms.
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Messages for the Mallorys
15 years ago
Hang in there honey. Tests are tests and you will be able to deal with it whatever the results. You have already shown them that you love them even in the worst of times. By example they know you and Phil will do what needs to be done to keep them healthy. What more could any parent do? I'm sending a group hug to all of you!
ReplyDeleteLove, Mom (Grandma)