Friday, March 27, 2009


Lily's hearing test was rather disheartening today. She is has moderate hearing loss in quite a few ranges and severe hearing loss in high pitch sounds. We have to call and get her in for another series of appointments to get hearing aides. She has been dropping at least one range each cycle and they say loss can continue for months after treatment stops. I have noticed subtle changes in her speech patterns and we all have noticed harder times getting her attention and how loud the TV has to be. Hopefully the hearing aides will be able to compensate and this will just be a minor hurdle and she won't experience any of the other long term side effects. I guess one of the biggest worries is that secondary leukemias usually develop within the first year, which is why they will monitor her monthly during this time. One hurdle at a time...this week we are jumping cycle #7. No sense in worrying about the rest til we have to.

1 comment:

  1. Hi Honey,

    Can't think of the right words. With your ability to get the right treatment for her I know you will get the best for her hearing too.

    One more hurdle. You and Lily are up to the challenge. You are a very strong mother and daughter team.


    Love, Mom (Grandma)


Lily Kay Monkey

Lily Kay Monkey
November 2008 Photographed by Shelley Detton (7 Layer Studio)